{"id":1302,"date":"2025-06-09T15:00:43","date_gmt":"2025-06-09T15:00:43","guid":{"rendered":"http:\/\/staging.cumcura.be\/?page_id=1302"},"modified":"2026-05-25T14:32:06","modified_gmt":"2026-05-25T14:32:06","slug":"onderzoek","status":"publish","type":"page","link":"https:\/\/staging.cumcura.be\/en\/onderzoek\/","title":{"rendered":"Research"},"content":{"rendered":"<div class=\"et_pb_section_0 et_pb_section et_section_regular et_block_section\"><div class=\"et_pb_row_0 et_pb_row et_block_row\"><div class=\"et_pb_column_0 et_pb_column et_pb_column_4_4 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_text_0 et_pb_text et_pb_bg_layout_light et_pb_module et_block_module\"><div class=\"et_pb_text_inner\"><h2><span style=\"color: #ffffff;\">Scientific research<\/span><\/h2>\n<\/div><\/div><div class=\"et_pb_divider_0 et_pb_divider et_pb_space et_pb_divider_position_top et_pb_module\"><div class=\"et_pb_divider_internal\"><\/div><\/div><\/div><\/div><div class=\"et_pb_row_1 et_pb_row et_block_row\"><div class=\"et_pb_column_1 et_pb_column et_pb_column_3_5 et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_text_1 et_pb_text et_pb_bg_layout_light et_pb_module et_block_module\"><div class=\"et_pb_text_inner\"><p><strong>Cum Cura VZW attaches great importance to scientific research,<br \/>both in Belgium and internationally.<\/strong><\/p>\n<p><strong>We actively participate<\/strong> in Belgian and international studies that offer real added value for people with sarcoma, desmoid, or giant cell tumors. These studies cover, among other things:<\/p>\n<blockquote>\n<p><span style=\"font-size: 16px;\">innovative treatment methods<\/span><\/p>\n<p><span style=\"font-size: 16px;\">improvement of quality of life<\/span><\/p>\n<p><span style=\"font-size: 16px;\">shared decision-making between patient and doctor, \u2026<\/span><\/p>\n<\/blockquote>\n<p>For the implementation of these research projects, especially at Belgian universities, sufficient funding is essential. <strong>That\u2019s why we collect donations to make promising projects possible.<\/strong><\/p>\n<\/div><\/div><\/div><div class=\"et_pb_column_2 et_pb_column et_pb_column_2_5 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_image_0 et_pb_image et_animated et_pb_module et_block_module\"><span class=\"et_pb_image_wrap\"><img data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" src=\"https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2019\/04\/TestBollen.png?resize=1080%2C1147\" width=\"1080\" height=\"1147\" srcset=\"https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2019\/04\/TestBollen.png?w=1265&amp;ssl=1 1265w, https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2019\/04\/TestBollen.png?resize=283%2C300&amp;ssl=1 283w, https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2019\/04\/TestBollen.png?resize=768%2C815&amp;ssl=1 768w, https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2019\/04\/TestBollen.png?resize=965%2C1024&amp;ssl=1 965w, https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2019\/04\/TestBollen.png?resize=1080%2C1147&amp;ssl=1 1080w\" sizes=\"(max-width: 1080px) 100vw, 1080px\" class=\"wp-image-262\" title=\"TestBollen\" \/><\/span><\/div><\/div><\/div><div class=\"et_pb_row_2 et_pb_row et_block_row\"><div class=\"et_pb_column_3 et_pb_column et_pb_column_4_4 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_text_2 et_pb_text et_pb_bg_layout_light et_pb_module et_block_module\"><div class=\"et_pb_text_inner\"><p><strong>Curious about the clinical studies<\/strong> currently underway on sarcoma, desmoid, and giant cell tumors? Use the search field below to explore the ongoing research studies.<\/p>\n<\/div><\/div><\/div><\/div><\/div><div class=\"et_pb_section_1 et_pb_section et_section_regular et_block_section\" id=\"watissarcoma\"><div class=\"et_pb_row_3 et_pb_row et_block_row\"><div class=\"et_pb_column_4 et_pb_column et_pb_column_4_4 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_text_3 et_pb_text et_pb_bg_layout_light et_pb_module et_block_module\"><div class=\"et_pb_text_inner\"><h2>Deelname onderzoeksprojecten<\/h2>\n<\/div><\/div><div class=\"et_pb_divider_1 et_pb_divider et_pb_space et_pb_divider_position_top et_pb_module\"><div class=\"et_pb_divider_internal\"><\/div><\/div><\/div><\/div><div class=\"et_pb_row_4 et_pb_row et_block_row\"><div class=\"et_pb_column_5 et_pb_column et_pb_column_4_4 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_accordion_0 et_pb_accordion et_pb_module et_block_module\"><div class=\"et_pb_accordion_item_0 et_pb_accordion_item et_pb_toggle et_pb_module et_pb_toggle_open et_block_module\"><h3 class=\"et_pb_toggle_title\">COMPASS voor Sarcoma<\/h3><div class=\"et_pb_toggle_content\"><p><b>Complete Omics Profiling for Precision Treatment and Diagnosis in Sarcoma<\/b><\/p>\n<p>This 3-year project aims <strong>to improve the genetic diagnostics of sarcomas<\/strong> by replacing traditional tests with high-tech profiling of the genome, gene, and protein expression (\u201comics analysis\u201d) of sarcomas. Advanced computational methods are used to translate the results into concrete diagnoses and treatment options. This approach will remove bottlenecks, identify biomarkers, improve care for sarcoma patients, and serve as a model for the diagnosis of other cancer types in the future.<\/p>\n<p>Project start: <strong>January 2026<\/strong><\/p>\n<p>The consortium consists of:<\/p>\n<ul>\n<li><strong>VIB<\/strong><br \/><em>Jonas Demeulemeester (coordinator en VIB-KU Leuven),\u00a0Bart Ghesqi\u00e8re (VIB Metabolomics Core),\u00a0Frederik Coppens (VIB.AI)<\/em><\/li>\n<li><strong>KU Leuven \/ UZ Leuven<\/strong><br \/><em>Isabelle Vanden Bempt &#8211; Lukas Marcelis \/ Raf Sciot &#8211; Luna De Sutter \/ Daphne Hompes &#8211; Pavlo Lutsik &#8211; Agnieszka Wozniak \/ Patrick Sch\u00f6ffski<\/em><\/li>\n<li><strong>Cum Cura vzw<\/strong><\/li>\n<\/ul>\n<\/div><\/div><div class=\"et_pb_accordion_item_1 et_pb_accordion_item et_pb_toggle et_pb_module et_pb_toggle_close et_block_module\"><h3 class=\"et_pb_toggle_title\">Research Project \u2013 Coping Styles in Patients and Loved Ones Facing Sarcoma<\/h3><div class=\"et_pb_toggle_content\"><p><strong>What coping styles are used by patients with suspected sarcoma and their loved ones, and how can healthcare respond to these needs?<\/strong><\/p>\n<p>It is known that patients who are suspected of having cancer experience stress and anxiety, which reduces their quality of life. How a patient and\/or their loved one deals with stress and anxiety during this phase depends on their coping style.<\/p>\n<p>Sarcomas are a rare and aggressive type of cancer. Only 1% of all adult cancer patients are diagnosed with a sarcoma. Patients suspected of having a bone sarcoma often experience pain, and their quality of life is generally lower than that of the general population\u2014partly due to the pain. Little is known about which coping styles are used by these patients and their loved ones, or how the experience of pain influences their coping style.<\/p>\n<p>This 2-year project investigates which coping styles are used by patients with suspected sarcoma and their loved ones. It also examines whether pain affects coping strategies, what kind of support is needed during the diagnostic phase, and who is best placed to provide that support (healthcare professionals, family, social network, or patient associations).<\/p>\n<p>Project start:\u00a0<strong>January 2025 - <em>sponsored by Foundation against Cancer<\/em><\/strong><\/p>\n<p>The consortium consists of:<\/p>\n<ul>\n<li><strong>UZ Gent<\/strong><br \/><em>Desir\u00e9e Dorleijn \/ Gwen Sys &#8211; An Lievrouw \/ Anneleen Raes \/ Nathalie Vandecasteele &#8211; Rebecca den Haese<\/em><\/li>\n<li><strong>Open University of the Netherlands<\/strong><br \/><em>Emelien Lauwerier<\/em><\/li>\n<li><strong>Cum Cura vzw<\/strong><\/li>\n<\/ul>\n<\/div><\/div><\/div><\/div><\/div><div class=\"et_pb_row_5 et_pb_row et_block_row\"><div class=\"et_pb_column_6 et_pb_column et_pb_column_4_4 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_text_4 et_pb_text et_pb_bg_layout_light et_pb_module et_block_module\"><div class=\"et_pb_text_inner\"><h2>The latest news regarding the research results\u00a0<\/h2>\n<\/div><\/div><div class=\"et_pb_divider_2 et_pb_divider et_pb_space et_pb_divider_position_top et_pb_module\"><div class=\"et_pb_divider_internal\"><\/div><\/div><\/div><\/div><div class=\"et_pb_row_6 et_pb_row et_block_row\"><div class=\"et_pb_column_7 et_pb_column et_pb_column_4_4 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_blog_0 et_pb_blog et_pb_bg_layout_light et_pb_posts et_pb_module\"><div class=\"et_pb_ajax_pagination_container\"><div class=\"et_pb_blog_posts et_grid_module\"><article class=\"et_pb_post et_pb_post_id_2081 clearfix et_pb_blog_item_0_0 post-2081 post type-post status-publish format-standard has-post-thumbnail hentry category-wetenschap\"><div class=\"et_pb_image_container\"><a href=\"https:\/\/staging.cumcura.be\/en\/260130-1\/\" class=\"entry-featured-image-url\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2026\/01\/WEB-PressRelease26_1.jpg?fit=1920%2C1080&#038;ssl=1\" width=\"400\" height=\"284\" alt=\"Nieuwe studiearm in de rEECur-studie met trabectedine voor terugkerend Ewing-sarcoom\" class=\"\" srcset=\"https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2026\/01\/WEB-PressRelease26_1.jpg?fit=1920%2C1080&amp;ssl=1 479w, https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2026\/01\/WEB-PressRelease26_1.jpg?resize=400%2C284&amp;ssl=1 480w\" sizes=\"(max-width:479px) 479px, 100vw\" \/><span data-icon=\"\ue050\" class=\"et_overlay et_pb_inline_icon\"><\/span><\/a><\/div><h2 class=\"entry-title\"><a href=\"https:\/\/staging.cumcura.be\/en\/260130-1\/\">New study arm in rEECur trial with Trabectedin for relapsed Ewing sarcoma<\/a><\/h2><p class=\"post-meta\">by <span class=\"author vcard\"><a href=\"https:\/\/staging.cumcura.be\/en\/author\/sarcoma\/\" title=\"Posts by sarcoma\" rel=\"author\">sarcoma<\/a><\/span> | <span class=\"published\">Jan 30, 2026<\/span> | <span class=\"entry-categories\"><a href=\"https:\/\/staging.cumcura.be\/en\/category\/wetenschap\/\" rel=\"tag\">Science<\/a><\/span><\/p><div class=\"post-content\"><div class=\"post-content-inner\"><p>Nieuwe studiearm in de rEECur-studie met trabectedine voor terugkerend Ewing-sarcoom Birmingham\/Manchester, Verenigd Koninkrijk, 21 januari 2026 Ewing-sarcoom, een zeldzame vorm van kanker van het bot en weke delen bij kinderen en jongvolwassenen, heeft een slechte&#8230;<\/p>\n<\/div><\/div><\/article><article class=\"et_pb_post et_pb_post_id_1996 clearfix et_pb_blog_item_0_1 post-1996 post type-post status-publish format-standard has-post-thumbnail hentry category-wetenschap tag-cumcura tag-reusceltumor tag-spagn-2\"><div class=\"et_pb_image_container\"><a href=\"https:\/\/staging.cumcura.be\/en\/251001-1\/\" class=\"entry-featured-image-url\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2025\/10\/WEB-PressRelease2.jpg?fit=1920%2C1080&#038;ssl=1\" width=\"400\" height=\"284\" alt=\"Belangrijke doorbraak voor de behandeling van tenosynoviale reusceltumoren (TGCT) bij volwassenen\" class=\"\" srcset=\"https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2025\/10\/WEB-PressRelease2.jpg?fit=1920%2C1080&amp;ssl=1 479w, https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2025\/10\/WEB-PressRelease2.jpg?resize=400%2C284&amp;ssl=1 480w\" sizes=\"(max-width:479px) 479px, 100vw\" \/><span data-icon=\"\ue050\" class=\"et_overlay et_pb_inline_icon\"><\/span><\/a><\/div><h2 class=\"entry-title\"><a href=\"https:\/\/staging.cumcura.be\/en\/251001-1\/\">Major breakthrough in the treatment of tenosynovial giant cell tumors (TGCT) in adults<\/a><\/h2><p class=\"post-meta\">by <span class=\"author vcard\"><a href=\"https:\/\/staging.cumcura.be\/en\/author\/sarcoma\/\" title=\"Posts by sarcoma\" rel=\"author\">sarcoma<\/a><\/span> | <span class=\"published\">Oct 1, 2025<\/span> | <span class=\"entry-categories\"><a href=\"https:\/\/staging.cumcura.be\/en\/category\/wetenschap\/\" rel=\"tag\">Science<\/a><\/span><\/p><div class=\"post-content\"><div class=\"post-content-inner\"><p>Voor het eerst is er in Europa een medicijn goedgekeurd voor de behandeling van tenosynoviale reusceltumoren (TGCT) bij volwassenen. Het gaat om Vimseltinib (handelsnaam: Romvimza). Dit is een belangrijke doorbraak voor pati\u00ebnten die tot nu toe bijna uitsluitend op chirurgie waren aangewezen.<\/p>\n<\/div><\/div><\/article><article class=\"et_pb_post et_pb_post_id_1915 clearfix et_pb_blog_item_0_2 post-1915 post type-post status-publish format-standard has-post-thumbnail hentry category-wetenschap tag-cumcura tag-desmoid tag-spagn-2\"><div class=\"et_pb_image_container\"><a href=\"https:\/\/staging.cumcura.be\/en\/250823-desmoid\/\" class=\"entry-featured-image-url\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2025\/08\/WEB-PressRelease1.1-scaled.jpg?fit=2560%2C1440&#038;ssl=1\" width=\"400\" height=\"284\" alt=\"Belangrijke doorbraak voor desmo\u00efdlotgenoten in Europa\" class=\"\" srcset=\"https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2025\/08\/WEB-PressRelease1.1-scaled.jpg?fit=2560%2C1440&amp;ssl=1 479w, https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2025\/08\/WEB-PressRelease1.1-scaled.jpg?resize=400%2C284&amp;ssl=1 480w\" sizes=\"(max-width:479px) 479px, 100vw\" \/><span data-icon=\"\ue050\" class=\"et_overlay et_pb_inline_icon\"><\/span><\/a><\/div><h2 class=\"entry-title\"><a href=\"https:\/\/staging.cumcura.be\/en\/250823-desmoid\/\">Major Breakthrough for Desmoid Tumor Patients in Europe<\/a><\/h2><p class=\"post-meta\">by <span class=\"author vcard\"><a href=\"https:\/\/staging.cumcura.be\/en\/author\/sarcoma\/\" title=\"Posts by sarcoma\" rel=\"author\">sarcoma<\/a><\/span> | <span class=\"published\">Aug 23, 2025<\/span> | <span class=\"entry-categories\"><a href=\"https:\/\/staging.cumcura.be\/en\/category\/wetenschap\/\" rel=\"tag\">Science<\/a><\/span><\/p><div class=\"post-content\"><div class=\"post-content-inner\"><p>On August 18, 2025, the European Commission (EC) approved nirogacestat (OGSIVEO\u00ae) for adults with progressive desmoid tumors requiring systemic treatment.<\/p>\n<\/div><\/div><\/article><\/div><div class=\"pagination clearfix\">\n\t<div class=\"alignleft\"><a href=\"https:\/\/staging.cumcura.be\/en\/wp-json\/wp\/v2\/pages\/1302\/page\/2\/?et_blog\" >&laquo; Older Entries<\/a><\/div>\n\t<div class=\"alignright\"><\/div>\n<\/div><\/div><\/div><\/div><\/div><div class=\"et_pb_row_7 et_pb_row et_block_row\"><div class=\"et_pb_column_8 et_pb_column et_pb_column_4_4 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_text_5 et_pb_text et_pb_bg_layout_light et_pb_module et_block_module\"><div class=\"et_pb_text_inner\"><h2>Search page<\/h2>\n<\/div><\/div><div class=\"et_pb_divider_3 et_pb_divider et_pb_space et_pb_divider_position_top et_pb_module\"><div class=\"et_pb_divider_internal\"><\/div><\/div><\/div><\/div><div class=\"et_pb_row_8 et_pb_row et_block_row\"><div class=\"et_pb_column_9 et_pb_column et_pb_column_4_4 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_image_1 et_pb_image et_pb_module et_block_module\"><a href=\"https:\/\/clinicaltrial.be\/en\/search\" target=\"_blank\"><span class=\"et_pb_image_wrap\"><img data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" src=\"https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2025\/07\/Clinical-trials-nl-1-scaled.jpg?resize=1080%2C549\" width=\"1080\" height=\"549\" srcset=\"http:\/\/staging.cumcura.be\/wp-content\/uploads\/2025\/07\/Clinical-trials-nl-1-scaled.jpg 2560w, http:\/\/staging.cumcura.be\/wp-content\/uploads\/2025\/07\/Clinical-trials-nl-1-1280x651.jpg 1280w, http:\/\/staging.cumcura.be\/wp-content\/uploads\/2025\/07\/Clinical-trials-nl-1-980x498.jpg 980w, http:\/\/staging.cumcura.be\/wp-content\/uploads\/2025\/07\/Clinical-trials-nl-1-480x244.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 2560px, 100vw\" class=\"wp-image-1559\" title=\"Clinical trials nl\" \/><\/span><\/a><\/div><\/div><\/div><div class=\"et_pb_row_9 et_pb_row et_block_row\"><div class=\"et_pb_column_10 et_pb_column et_pb_column_4_4 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_text_6 et_pb_text et_pb_bg_layout_light et_pb_module et_block_module\"><div class=\"et_pb_text_inner\"><h2>Search results with Cum Cura VZW medical services<\/h2>\n<\/div><\/div><div class=\"et_pb_divider_4 et_pb_divider et_pb_space et_pb_divider_position_top et_pb_module\"><div class=\"et_pb_divider_internal\"><\/div><\/div><\/div><\/div><div class=\"et_pb_row_10 et_pb_row et_pb_row_1-4_3-4 et_block_row et_block_row_1-4_3-4\"><div class=\"et_pb_column_11 et_pb_column et_pb_column_1_4 et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_image_2 et_pb_image et_animated et_pb_module et_block_module\"><span class=\"et_pb_image_wrap\"><img data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" src=\"https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2019\/04\/TestBollen.png?resize=1080%2C1147\" width=\"1080\" height=\"1147\" srcset=\"https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2019\/04\/TestBollen.png?w=1265&amp;ssl=1 1265w, https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2019\/04\/TestBollen.png?resize=283%2C300&amp;ssl=1 283w, https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2019\/04\/TestBollen.png?resize=768%2C815&amp;ssl=1 768w, https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2019\/04\/TestBollen.png?resize=965%2C1024&amp;ssl=1 965w, https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2019\/04\/TestBollen.png?resize=1080%2C1147&amp;ssl=1 1080w\" sizes=\"(max-width: 1080px) 100vw, 1080px\" class=\"wp-image-262\" title=\"TestBollen\" \/><\/span><\/div><\/div><div class=\"et_pb_column_12 et_pb_column et_pb_column_3_4 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_text_7 et_pb_text et_pb_bg_layout_light et_pb_module et_block_module\"><div class=\"et_pb_text_inner\"><h2><\/h2>\n<p>&nbsp;<\/p>\n<p>\u00a0This section is under development. More information will follow soon.<\/p>\n<p>&nbsp;<\/p>\n<\/div><\/div><\/div><\/div><\/div><div class=\"et_pb_section_2 et_pb_section et_section_regular et_block_section\"><div class=\"et_pb_row_11 et_pb_row et_block_row\"><div class=\"et_pb_column_13 et_pb_column et_pb_column_4_4 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_text_8 et_pb_text et_pb_bg_layout_light et_pb_module et_block_module\"><div class=\"et_pb_text_inner\"><h2>Financial Support\u00a0<\/h2>\n<\/div><\/div><div class=\"et_pb_divider_5 et_pb_divider et_pb_space et_pb_divider_position_top et_pb_module\"><div class=\"et_pb_divider_internal\"><\/div><\/div><\/div><\/div><div class=\"et_pb_row_12 et_pb_row et_block_row\"><div class=\"et_pb_column_14 et_pb_column et_pb_column_2_3 et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_blurb_0 et_pb_blurb et_pb_bg_layout_light et_pb_blurb_position_left et_pb_module et_block_module\"><div class=\"et_pb_blurb_content\"><div class=\"et_pb_main_blurb_image et_animated\"><span class=\"et_pb_image_wrap\"><span class=\"et-pb-icon\">\ue046<\/span><\/span><\/div><div class=\"et_pb_blurb_container\"><h3 class=\"et_pb_module_header\">UGent &#8211; Steunactieplatform voor Sarcoma<\/h3><div class=\"et_pb_blurb_description\"><p><b>Sarcoma<\/b> is a rare type of locally aggressive and malignant bone or soft tissue tumor. VZW Cum Cura supports scientific research, including at UGent.<\/p>\n<p><strong>How can you support sarcoma research through UGent?<br \/><\/strong><strong>You can make a donation<\/strong> online via this <a href=\"https:\/\/actieplatform.ugent.be\/nl-NL\/project\/cum-cura-vzw-onderzoek-sarcoom-recherche-sarcome?tab=overzicht\">link<\/a> or by bank transfer. For bank transfers, please use the account number BE26 3900 9658 0329, with the reference: <strong>Cum Cura VZW \u2013 sarcoma research.<\/strong>.<\/p>\n<p><strong>Do you have questions or comments regarding your donation?<\/strong><br \/>Contact the UGent University Fund at universiteitsfonds@ugent.be or call +32 (0)9 264 33 77.<\/p>\n<\/div><\/div><\/div><\/div><\/div><div class=\"et_pb_column_15 et_pb_column et_pb_column_1_3 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_image_3 et_pb_image et_pb_module et_block_module\"><a href=\"https:\/\/actieplatform.ugent.be\/nl-NL\/project\/cum-cura-vzw-onderzoek-sarcoom-recherche-sarcome?tab=overzicht\" target=\"_blank\"><span class=\"et_pb_image_wrap\"><img data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" src=\"https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2025\/06\/2025_Website-UZ-sponsoring-onderzoek.jpg?resize=1080%2C764\" width=\"1080\" height=\"764\" srcset=\"http:\/\/staging.cumcura.be\/wp-content\/uploads\/2025\/06\/2025_Website-UZ-sponsoring-onderzoek.jpg 2206w, http:\/\/staging.cumcura.be\/wp-content\/uploads\/2025\/06\/2025_Website-UZ-sponsoring-onderzoek-1280x905.jpg 1280w, http:\/\/staging.cumcura.be\/wp-content\/uploads\/2025\/06\/2025_Website-UZ-sponsoring-onderzoek-980x693.jpg 980w, http:\/\/staging.cumcura.be\/wp-content\/uploads\/2025\/06\/2025_Website-UZ-sponsoring-onderzoek-480x339.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 2206px, 100vw\" class=\"wp-image-1427\" title=\"2025_Website UZ sponsoring onderzoek\" \/><\/span><\/a><\/div><\/div><\/div><div class=\"et_pb_row_13 et_pb_row et_block_row\"><div class=\"et_pb_column_16 et_pb_column et_pb_column_4_4 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_toggle_0 et_pb_toggle et_pb_toggle_item et_pb_toggle_close et_pb_module et_block_module\"><h4 class=\"et_pb_toggle_title\">Which ongoing sarcoma research at UGent is supported by your donation?<\/h4><div class=\"et_pb_toggle_content clearfix\"><ul>\n<li><strong>The development of \u201cmodels\u201d to simulate sarcoma in the lab,<\/strong> where treatments are tested on lab animals to see which are effective and which are not. This provides more insights into sarcoma behavior and possible new treatments. Examples include cell cultures (where we try to grow cells from tumors in the lab and directly test treatments on these cells), or lab animals (where patient tumors are implanted in mice, which are then treated with chemotherapy). More info about this project can be found here: <a href=\"https:\/\/www.scicomm-clips.eu\/nl\/hoe-winnen-we-de-strijd-tegen-zeldzame-kankers-zoals-sarcoma\">https:\/\/www.scicomm-clips.eu\/nl\/hoe-winnen-we-de-strijd-tegen-zeldzame-kankers-zoals-sarcoma<\/a><\/li>\n<li>Patient data from recent years are being studied to understand how sarcoma behaves. A large <strong>database<\/strong>\u00a0is maintained <strong>with patients treated at UZ Gent.<\/strong>This database enables research to map risk factors, chances of recurrence, how a specific tumor behaves, and more.<\/li>\n<li>Maintaining a large <strong>biobank<\/strong> with tumor samples from patients operated on at UZ Gent. This biobank contains hundreds of sarcoma samples, a huge treasure trove of information for researchers investigating specific subtypes. (<a href=\"https:\/\/www.uzgent.be\/patient\/zoek-een-arts-of-dienst\/biobank\/collecties-van-de-biobank#sarcoma\">https:\/\/www.uzgent.be\/patient\/zoek-een-arts-of-dienst\/biobank\/collecties-van-de-biobank#sarcoma<\/a>\u00a0)<\/li>\n<li>Research on surgeries performed on sarcoma patients, including a project developing a <strong>customized guide (\u201cmold\u201d)<\/strong> that can be placed on the patient\u2019s bone to enable precise tumor removal. This mold is tailored to the patient to ensure the bone is cut at the right place and no tumor remains.<\/li>\n<li>Research on <strong>lipomas<\/strong> treated at UZ Gent to determine which patients have a higher risk of metastases or local recurrence.<\/li>\n<li>Determining which <strong>psychosocial<\/strong> <strong>support<\/strong> patients newly diagnosed with sarcoma need, depending on their coping mechanisms.<\/li>\n<\/ul>\n<\/div><\/div><\/div><\/div><div class=\"et_pb_row_14 et_pb_row et_pb_row_3-5_1-5_1-5 et_block_row et_block_row_3-5_1-5_1-5\"><div class=\"et_pb_column_17 et_pb_column et_pb_column_3_5 et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_blurb_1 et_pb_blurb et_pb_bg_layout_light et_pb_blurb_position_left et_pb_module et_block_module\"><div class=\"et_pb_blurb_content\"><div class=\"et_pb_main_blurb_image et_animated\"><span class=\"et_pb_image_wrap\"><span class=\"et-pb-icon\">\ue046<\/span><\/span><\/div><div class=\"et_pb_blurb_container\"><h3 class=\"et_pb_module_header\">KU Leuven &#8211; Sarcoma<\/h3><div class=\"et_pb_blurb_description\"><p><strong>How can you support sarcoma research at KU Leuven?\u00a0<br \/><\/strong>A donation can be made via:<\/p>\n<ul>\n<li>the online <a href=\"https:\/\/icts.kuleuven.be\/apps\/fondsen\/4000521\/en\/donate?vgs=400002804046\" target=\"_blank\" rel=\"noopener\">donation page<\/a><\/li>\n<li>the KU Leuven bank account number BE45 7340 1941 7789, BIC code KREDBEBB<br \/>with the structured message: +++400\/0028\/04046+++<\/li>\n<li>the QR code shown alongside<\/li>\n<\/ul>\n<p><strong>Do you have questions or comments regarding your donation?<\/strong><br \/>Please contact the KU Leuven Fundraising Office at steun@kuleuven.be.<\/p>\n<\/div><\/div><\/div><\/div><\/div><div class=\"et_pb_column_18 et_pb_column et_pb_column_1_5 et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_image_4 et_pb_image et_pb_module et_block_module\"><a href=\"https:\/\/icts.kuleuven.be\/apps\/fondsen\/4000521\/en\/donate?vgs=400002804046\" target=\"_blank\"><span class=\"et_pb_image_wrap\"><img data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" src=\"https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2025\/07\/Onderzoek-kul-sarcoma2.jpg?resize=1080%2C1395\" width=\"1080\" height=\"1395\" srcset=\"http:\/\/staging.cumcura.be\/wp-content\/uploads\/2025\/07\/Onderzoek-kul-sarcoma2.jpg 1175w, http:\/\/staging.cumcura.be\/wp-content\/uploads\/2025\/07\/Onderzoek-kul-sarcoma2-980x1266.jpg 980w, http:\/\/staging.cumcura.be\/wp-content\/uploads\/2025\/07\/Onderzoek-kul-sarcoma2-480x620.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) 1175px, 100vw\" class=\"wp-image-1574\" title=\"Onderzoek kul sarcoma2\" \/><\/span><\/a><\/div><\/div><div class=\"et_pb_column_19 et_pb_column et_pb_column_1_5 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_image_5 et_pb_image et_pb_module et_block_module\"><a href=\"https:\/\/icts.kuleuven.be\/apps\/fondsen\/4000521\/en\/donate?vgs=400002804046\" target=\"_blank\"><span class=\"et_pb_image_wrap\"><img data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" src=\"https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2025\/07\/QR-code-giften-t.v.v.-sarcomen.png?resize=1080%2C1080\" width=\"1080\" height=\"1080\" srcset=\"http:\/\/staging.cumcura.be\/wp-content\/uploads\/2025\/07\/QR-code-giften-t.v.v.-sarcomen.png 1980w, http:\/\/staging.cumcura.be\/wp-content\/uploads\/2025\/07\/QR-code-giften-t.v.v.-sarcomen-1280x1280.png 1280w, http:\/\/staging.cumcura.be\/wp-content\/uploads\/2025\/07\/QR-code-giften-t.v.v.-sarcomen-980x980.png 980w, http:\/\/staging.cumcura.be\/wp-content\/uploads\/2025\/07\/QR-code-giften-t.v.v.-sarcomen-480x480.png 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 1980px, 100vw\" class=\"wp-image-1570\" title=\"QR-code giften t.v.v. sarcomen\" \/><\/span><\/a><\/div><\/div><\/div><div class=\"et_pb_row_15 et_pb_row et_pb_row_3-5_1-5_1-5 et_block_row et_block_row_3-5_1-5_1-5\"><div class=\"et_pb_column_20 et_pb_column et_pb_column_3_5 et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_blurb_2 et_pb_blurb et_pb_bg_layout_light et_pb_blurb_position_left et_pb_module et_block_module\"><div class=\"et_pb_blurb_content\"><div class=\"et_pb_main_blurb_image et_animated\"><span class=\"et_pb_image_wrap\"><span class=\"et-pb-icon\">\ue046<\/span><\/span><\/div><div class=\"et_pb_blurb_container\"><h3 class=\"et_pb_module_header\">KU Leuven &#8211; Desmoid<\/h3><div class=\"et_pb_blurb_description\"><p><strong>How can you support desmoid tumor research at KU Leuven?<br \/><\/strong>A donation can be made via:<\/p>\n<ul>\n<li>the online <a href=\"https:\/\/icts.kuleuven.be\/apps\/fondsen\/4000521\/en\/donate?vgs=400002804047\" target=\"_blank\" rel=\"noopener\">donation page<\/a><\/li>\n<li>the KU Leuven bank account number BE45 7340 1941 7789, BIC code KREDBEBB <br \/>with the structured message: +++400\/0028\/04047+++<\/li>\n<li>the QR code shown alongside<\/li>\n<\/ul>\n<p><strong>Do you have questions or comments regarding your donation?<\/strong><br \/>Please contact the KU Leuven Fundraising Office at steun@kuleuven.be.<\/p>\n<\/div><\/div><\/div><\/div><\/div><div class=\"et_pb_column_21 et_pb_column et_pb_column_1_5 et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_image_6 et_pb_image et_pb_module et_block_module\"><a href=\"https:\/\/icts.kuleuven.be\/apps\/fondsen\/4000521\/en\/donate?vgs=400002804047\" target=\"_blank\"><span class=\"et_pb_image_wrap\"><img data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" src=\"https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2025\/07\/Onderzoek-kul-desmoid2.jpg?resize=1080%2C1381\" width=\"1080\" height=\"1381\" srcset=\"http:\/\/staging.cumcura.be\/wp-content\/uploads\/2025\/07\/Onderzoek-kul-desmoid2.jpg 1187w, http:\/\/staging.cumcura.be\/wp-content\/uploads\/2025\/07\/Onderzoek-kul-desmoid2-980x1253.jpg 980w, http:\/\/staging.cumcura.be\/wp-content\/uploads\/2025\/07\/Onderzoek-kul-desmoid2-480x614.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) 1187px, 100vw\" class=\"wp-image-1573\" title=\"Onderzoek kul desmoid2\" \/><\/span><\/a><\/div><\/div><div class=\"et_pb_column_22 et_pb_column et_pb_column_1_5 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_image_7 et_pb_image et_pb_module et_block_module\"><a href=\"https:\/\/icts.kuleuven.be\/apps\/fondsen\/4000521\/en\/donate?vgs=400002804047\" target=\"_blank\"><span class=\"et_pb_image_wrap\"><img data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" src=\"https:\/\/i0.wp.com\/staging.cumcura.be\/wp-content\/uploads\/2025\/07\/QR-code-giften-t.v.v.-desmoid-tumoren.png?resize=1080%2C1080\" width=\"1080\" height=\"1080\" srcset=\"http:\/\/staging.cumcura.be\/wp-content\/uploads\/2025\/07\/QR-code-giften-t.v.v.-desmoid-tumoren.png 1980w, http:\/\/staging.cumcura.be\/wp-content\/uploads\/2025\/07\/QR-code-giften-t.v.v.-desmoid-tumoren-1280x1280.png 1280w, http:\/\/staging.cumcura.be\/wp-content\/uploads\/2025\/07\/QR-code-giften-t.v.v.-desmoid-tumoren-980x980.png 980w, http:\/\/staging.cumcura.be\/wp-content\/uploads\/2025\/07\/QR-code-giften-t.v.v.-desmoid-tumoren-480x480.png 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 1980px, 100vw\" class=\"wp-image-1569\" title=\"QR-code giften t.v.v. desmo\u00efd tumoren\" \/><\/span><\/a><\/div><\/div><\/div><div class=\"et_pb_row_16 et_pb_row et_block_row\"><div class=\"et_pb_column_23 et_pb_column et_pb_column_4_4 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_toggle_1 et_pb_toggle et_pb_toggle_item et_pb_toggle_close et_pb_module et_block_module\"><h4 class=\"et_pb_toggle_title\">Which ongoing research on sarcoma and desmoid at KU Leuven is supported by your donation?<\/h4><div class=\"et_pb_toggle_content clearfix\"><p>The Laboratory of Experimental Oncology (LEO), KU Leuven under the leadership of Prof. P. Sch\u00f6ffski has developed more than 100 patient-derived xenograft mouse models of human sarcomas (PDX; XenoSarc platform) since 2004. This is the world's largest collection of well-characterised PDX sarcoma models, which are currently used to test novel anti-sarcoma drugs in preclinical studies in collaboration with academic groups and the pharmaceutical industry. The results provide the scientific rationale for ongoing and planned clinical studies. <a href=\"https:\/\/gbiomed.kuleuven.be\/english\/research\/50488876\/50488902\/xenosarc\" target=\"_blank\" rel=\"noopener\">More information<\/a>.<\/p>\n<p>Furthermore, LEO has established a large collection of blood samples (LECTOR bloodbank). The bloodbank contains samples that are used to study specific biological markers in sarcoma patients, enabling us to evaluate the biology of sarcoma and to monitor the disease and the response to a given anticancer treatment.<\/p>\n<p>In addition, LEO has developed tissue microarrays (TMAs) using archival tissue samples originating from sarcoma patients. TMAs are paraffin blocks containing multiple small tissue cores, each representing a tumour fragment from a different patient disease stage or anatomical site. TMAs can be used to identify new targets for therapy. This tool enables us to study the histopathological and molecular evolution of rare sarcomas to be performed in a cost-efficient way. <a href=\"https:\/\/gbiomed.kuleuven.be\/english\/research\/50488876\/50488902\/xenosarc\" target=\"_blank\" rel=\"noopener\">More information<\/a>.<\/p>\n<p>All collected samples and models are linked to an extensive database, containing clinical data, including the demographics, diagnoses and survival information of sarcoma patients (LECTOR database). These data are used to evaluate the epidemiology and clinical behaviour of selected sarcoma subtypes, including ultra-rare diseases. The database connects all other platforms described above.<\/p>\n<p>The continuous maintenance and expansion of all these very exclusive research tools is very cost-intense and is dependent on research funds. The research platforms established by LEO have provide the rationale for several clinical studies in patients with sarcoma and related diseases, such as desmoid fibromatosis and others.<\/p>\n<\/div><\/div><\/div><\/div><\/div><div class=\"et_pb_section_3 et_pb_section et_section_regular et_block_section\"><\/div><div class=\"et_pb_section_4 et_pb_section et_section_regular et_block_section\"><div class=\"et_pb_row_17 et_pb_row et_pb_row_4col et_block_row et_block_row_4col\"><div class=\"et_pb_column_24 et_pb_column et_pb_column_1_4 et_block_column et_pb_column_empty et_pb_css_mix_blend_mode_passthrough\"><\/div><div class=\"et_pb_column_25 et_pb_column et_pb_column_1_4 et_block_column et_pb_column_empty et_pb_css_mix_blend_mode_passthrough\"><\/div><div class=\"et_pb_column_26 et_pb_column et_pb_column_1_4 et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_text_9 et_pb_text et_pb_bg_layout_light et_pb_module et_block_module\"><div class=\"et_pb_text_inner\"><p><span style=\"color: #ebf6fd;\"><\/span><\/p>\n<p><span style=\"color: #ebf6fd;\">As a <b>Volunteer <\/b>log in here.<\/span><\/p>\n<\/div><\/div><\/div><div class=\"et_pb_column_27 et_pb_column et_pb_column_1_4 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_cta_0 et_pb_promo et_pb_bg_layout_light et_pb_module et_block_module\"><div class=\"et_pb_promo_description et_multi_view_hidden\"><\/div><div class=\"et_pb_button_wrapper\"><a class=\"et_pb_button et_pb_promo_button\" target=\"_blank\" href=\"https:\/\/cumcura.sharepoint.com\/sites\/Vrijwilligers\" rel=\"noreferrer\">Log in<\/a><\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-1302","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.7 - 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